Engender blog

Trapped: the call for a more flexible world

Fran Macilvey is an Edinburgh-based author. Her memoir ‘Trapped’ tells the story of her life with cerebral palsy. She has also published two self-help books which she thinks of as ‘gleaning something valuable from forty years of making mistakes’ and has recently finished writing three novels about women’s experiences with the law.

As part of a series of events being organised by Edinburgh Libraries to mark International Women’s Day on 8^th March 2022, I was asked to take part in a panel discussion. Our brief, to publicise the life and work of an Edinburgh-based woman (or group of women, why not?) brought me to Engender, who invited me to contribute a guest post to ‘On the Engender’. I’m delighted and honoured to have this opportunity.

Reading Engender’s 2018 report, Our Bodies, Our Rights has been a vindicating – and at times, depressing – experience. It is a brave and realistic assessment (at last!) of the gaps in health and social provision that hinder disabled women in exercising their private and reproductive choices; in effect, their most basic human rights. Whether to have intimate relationships – read that again – whether to get married and have children, and how to bring them into adulthood while running the gamut of inconsistent and unpredictable help from professionally-minded others with rather mixed agendas. Thorny personal decisions which, as often as not, we have to navigate alone, in the face of fairly generalised ignorance and many misplaced good intentions. But this is only one aspect of the price that I, and countless others, continue to pay in our efforts to participate in mainstream life.

GUEST POST: Stand with the pro-choice voice across the US

Feminist across the world have continued to watch in horror as reproductive rights are under attack in the USA. In this blog, Jane Carnall, an activist with Abortion Rights Edinburgh sets out why we must act in solidarity with those seeking access to abortion in the states.

This month, a law passed by the Republican majority governing Texas came into force, and effectively banned all legal abortion in the state of Texas after six weeks gestation - that is, well before most people would even realise they're pregnant.

On 2nd October, Abortion Rights Scotland is taking part in the international day of action against this legislation.

GUEST POST: Bridging the gender health gap

Women and girls face significant barriers to good mental and physical health. Historic lack of funding for, or professional focus on, health issues that disproportionately affect women, or affect women differently to men, can mean that these issues are not equally accommodated for in health services or awareness-raising initiatives. This anonymous guest blog explores gendered health inequalities and what progress is being made on bridging the gender health gap.

It took roughly six years of medical appointments before a tentative diagnosis of chronic pain – a condition that, by definition, is pain lasting longer than three months despite treatment. Part of the issue was that the pain, among other symptoms, had never really been treated; it was repeatedly misdiagnosed, from appendicitis to pregnancy, and continuously dismissed as stress or growing pains.

It was a strange relief to eventually be referred to an endometriosis specialist and women’s heath physiotherapist session, though the relief was short-lived – while I did receive some pain management, the former concluded that the pain did not appear severe enough to suggest the presence of the condition, nor warrant further investigation, and the latter prescribed mindfulness. Like many others, until recently I had never heard of endometriosis – despite its high prevalence rate and top ranking in the NHS’ 20 most painful conditions. I also found that, like many other people, my experience of healthcare was not unique. In recent years, there has been increasing awareness and recognition of such experiences as symptomatic of a wider issue: a gender disparity in medical research, knowledge and treatment that has amounted to a gender health gap.

GUEST POST: Sex, Relationships and Parenthood – A Network Supporting Young Women and Girls with a Learning Disability

In this guest blog, Yvonne Kerr, Programme Manager in Sexual Health and Blood Born Viruses at NHS Lothian, discusses the national Relationships, Sexual Health and Parenthood and Learning Disability / Additional Support Needs Network.

Engender’s report, Our Bodies Our Rights, found that a lack of knowledge and access to information acts as a barrier to disabled women’s reproductive rights because of a huge knowledge gap regarding disabled women’s reproductive, sexual and maternal health. It also found that access to inclusive and targeted sex and relationships education for disabled young women and girls is also almost entirely absent from mainstream and specialist education.

We therefore recommended that “Scottish Government, Education Scotland and local authorities should work together to create a national network of RHSP workers specialising in disability who can share good practice across Scotland”. We are very pleased to be members and to work with Yvonne and others to help organise the secretariat for the Network to advocate for girls and young women’s rights in RSHP education. We asked Yvonne to write a blog about her work in this area.

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